I have a grandson who suffers from a genetic disorder that no one can firmly identify. He suffers night blindness, and may lose total vision, he has deteriorating hearing and is tube fed. He also suffer enormously with vomiting and diarrhoea and every move he makes is like a real workout session. Ted is 6yrs old. He is the most amazing and funny and upbeat person I have ever had the pleasure of meeting. He has achieved so much more than others thought possible. He goes through awfully painful tests and procedures yet never complains and his resilience is a testament to his strength. Teddy is my Superhero, my inspiration, my grandson and I am so proud of this lil brave man. He has my heart and unconditional love.